Exactly one year ago, my nine month old nephew, Isaiah, was at Sacred Heart Children's hospital in Spokane in kidney failure. He was on 24 hour dialysis, and had about seven different tubes leading in and out of his 20 pound body and his best hope was a non-FDA approved test drug that cost $2500 a dose. The 5 weeks in the hospital put him behind developmentally and he had to go to three different types of therapy every week.
Today his AHUS is in complete remission, his bimonthly treatments are FDA approved and also covered by insurance. He's a healthy, happy, walking and talking 21 month old.